The best laid schemes of mice and men…

Well I thought everything was sorted regarding our next visit to Manchester for Pudding’s trial medication. Hubby was going to come with us for this second time, to help me with the drive between hospital and hotel among other things. Someone would be picking Twiglet up from school tomorrow for gym club and then deliver him to Sister for the next two nights. After school club sorted.

Then last week, Hubby came down with a cold and I started praying that Pudding wouldn’t catch it. If he’s unwell, his sensitivity to the normal weekly infusions is heightened – but at least if his temperature goes up during ERT it can be switched off, as happened previously. With the injection of enzyme into the spinal fluid, once it’s in, it’s in, and any reaction would have to be managed with more medication.

Pudding has now succumbed to a cold, but seems generally ok apart from a runny nose. Still ok for Manchester?

But Hubby is now suffering from a nasty bug, and I doubt whether turning up at a hospital like that is a good idea. Twiglet’s cough has worsened and he had a temperature of 40 degrees earlier (not that I always believe the accuracy of my thermometer). Unless we see a miraculous recovery by morning, school is unlikely.

I know I’ve said it before, but I hate how since MPS reared its ugly head, the littlest things take on so much more significance. Ho hum!

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