When I got the phone message at 5.30 on a Friday afternoon I knew it was not going to be good news. ‘Hi, this is your pediatrician. Please can you call me back before six, or speak to my secretary first thing on Monday morning.’
I’ve been expecting this since the second urine sample was taken – the screening test for MPS. I managed to speak to him and arranged to meet at the hospital today. He confirmed the positive screen and Pudding had more blood taken – this will be sent to Manchester to work out which type he has.
I feel strangely empty and matter-of-fact during the short appointment. Hubby still doesn’t have any idea of the implications of this condition – I haven’t told him what I’ve found out, not while he’s been so busy with work and overseas trips.